1. Definitions

1.1. Processor is a legal entity that determines the purposes and methods of personal data processing.
Controller: Estonian Hemophilia Society
Company registration code: 80016222
Address: Lepiku tee 19, Tartu 61713
Contacts: +372 5021717,
1.2. Data subject is a natural person who can be directly or indirectly identified by the Processor using the processed data.
1.3. Visitor is a person who uses the Processor's website.

1.4. Services are all services provided by the Processor.
1.5. Cookies are data files that are stored on the website Visitor's device.
1.6. Personal data processing is any automated or non-automated operation or set of operations performed with personal data or their collections, including collection, storage, transmission.
1.7. The purpose of the data protection conditions is to explain the principles of personal data processing, including what personal data and for what purposes the Estonian Hemophilia Society collects and what are the rights of data subjects in relation to the processing of their personal data by the Estonian Hemophilia Society.
1.8. The Website is the Estonian Hemophilia Society, a non-profit organization, i.e. the Processor's website and its subdomains as well as the Processor's social media pages.

2. Use of collected personal data 

By agreeing to the terms of the privacy policy, the customer gives consent to the automated processing of his data by the Estonian Hemophilia Society. You can always withdraw your consent by making a statement in a form that enables written reproduction.

The client's personal data is stored by the Estonian Hemophilia Society according to the need to provide the service. Data that the Estonian Hemophilia Society is obliged to store due to legislation (e.g. accounting data) is stored by the Estonian Hemophilia Society based on the requirements stipulated in the legislation.

2.1. Information that may be collected about data subjects:

  • First and surnames
  • Contact details (e-mail address, phone number)

3. Rights of the data subject

The Estonian Hemophilia Society implements all precautions (including administrative, technical and physical measures) to protect the customer's personal data. Only authorized persons have access to change and process data.
3.1. The data subject is responsible for ensuring that the data provided by him is accurate, correct and complete.
3.2. The data subject has the right to get access to his personal data and to familiarize himself with them.
3.3. The data subject has the right to receive information about the processing of his personal data.
3.4. The data subject has the right to supplement or correct inaccurate data.
3.5. If the data processor processes the data subject's personal data on the basis of the data subject's consent, the data subject has the right to withdraw the consent at any time.
3.6. To exercise the rights, the data subject can send a corresponding request to the address
3.7. The data subject can file a complaint with the Data Protection Inspectorate to protect his rights.

4. Cookies

A cookie is a small text file that is saved in the web browser of your device (computer, smart device, etc.) when you visit a website. On each of your subsequent visits to the website, the cookies are sent back to this website or to another website that recognizes the cookie in order to get an overview of the user's online activity.

Additional information about the cookies used on the website can be found here.

5. Security

Personal data is stored on servers located in the territory of a member state of the European Union or countries that have joined the European Economic Area. Data may be transferred to countries whose level of data protection has been assessed as adequate by the European Commission and to US companies that are affiliated with the Privacy Shield framework.

The processor implements appropriate physical, organizational and IT security measures to protect personal data from accidental or illegal destruction, loss, alteration or unauthorized access and disclosure.

6. Third Party Sites and Use of Your Information

Our website may contain pages of other websites that we do not manage. This Privacy Policy does not address the privacy policies or other practices of any third party, including any websites or third parties operating the Service that may be accessed through the Service page. We strongly recommend that you review the privacy policy of each website you visit. We have no control over and are not responsible for the content, privacy policies or practices of third party websites or services.

7. Complaints

If you have questions or concerns regarding the processing of information received from us, you can write to Eesti Hemofiiliaühing, Lepiku tee 19, email:

Valid from 04.04.2023
Last updated 04.04.2023

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